On the Road with Diabetes

Lately I’ve been on the road a lot. Which is a way I love to be! I love the adventure of navigating a new place. I like to go at it without a GPS (which is good since I don’t own one) and ask for directions as many times as possible from as many different people as I can. This seems strange, I know, but it is a fabulous way to discover the hidden nooks of a place and to get a sense of the general friendliness and openness of a community.

When you ask a local for directions, you can often tell right away how they feel about that place. People will light up when describing a route to you through a town or countryside that they love. They will shake their heads and look down and make scoffing, grunting sounds, or else, like when I landed in the worst neighborhood in San Francisco dragging my big red suitcase, with no cash, they will make purse-lipped, “Mhmm,” sounds with a furrowed brow and tell you not to make eye contact and to just keep moving. That’s not my style, so I asked a cop for directions further down the road hoping he might offer to transport me in his squad car. He didn’t, he just made more, “Mhmm,” sounds of worry and confusion for me.

When I’m traveling half of my mind is engrossed in the outer landscape and the other half is engrossed in my inner physiological landscape. I simultaneously hate and appreciate this. As much as I try to tell myself beforehand, “I’m going to just not care what my blood sugar is on this trip,” I always still do! When I have high blood sugar and have an hour or two of a drive yet, I feel like frustration is swelling inside of my heart. Having high blood sugar already makes me feel like a caged animal, and having it while being in a car is like that feeling times two. I can’t even (quite literally) shake it off, by going for a walk, or jog, etc. And I’m always puzzled between the fine dance of ‘conservative’ bolusing, so that I don’t go low if I’m driving, and extra bolusing or increased basal for the more sedentary time of travel.

Diabetes management thrives on routine or else requires the operator (me) to become a lot more involved. Which is the opposite of what I want to do on vacation. I want to say to my friends, “I don’t care where we go to dinner, take me to your favorite place!” Or, “Yeah, cheesecake sounds great!” Sometimes, I have an impulse to do that thing called…relaxing, where your mind sort of goes blank and you stop strategizing for the best possible way to achieve balance and you just sort of…veg.

But instead I pack a rigorous cooler full of literal veggies and nut butters, snack foods of all kinds, instant coffee (can’t really attribute that to diabetes, but it helps), and try to picnic as much as possible. The picnic is key because usually a good spot for picnicking is also a good spot for walking, which is a really useful tool on car trips. Often I park far from my ultimate destination and play the ‘ask for directions’ game on the way to wherever I’m going, which usually helps me get a good walk in. But I think the best outcome for me on the road comes from that good cache of snacks that I can use to fill-up a little before and meal at a restaurant that might not have as much to offer in the way of non-spiking foods or to munch on in the morning before my companions wake up. I would recommend the noble avocado, as the perfect snack for morning, afternoon, or night, compatible with sweet and savory, filling, and rich in happy making omega-3’s. I have more to say on this topic, but for now I’ve got to move.

A Backpack and a Paper Home

September 2011

Well, it’s been a long, busy road since my last post – taking me out of N.C. and into France. From there I traveled through Switzerland, into the edge of Austria, up into the corner of Germany and back again to my home base in the Loire Valley. Along the way I stopped in Zurich, Montreaux, Chamonix, and other parts of France. I carried my insulin in frio packs from hostel to hostel, sometimes finding a refrigerator and sometimes continuing to re-wet the pack every day or so to keep them cold. I ate an elaborate array of cheeses and pates in Paris, sausage and pretzel breads in Austria, and not much in Switzerland since everything was so expensive! It was a bread-filled time for me, lots of baguettes and butter, but also a lot of walking. Traveling for 2.5 months without a car necessitates a lot of time on your feet. And for a month of that I carried a 40 lb. backpack with me, full of medical supplies, clothes, hiking boots, and the essential memory recording equipment; a journal, camera, and two sketchpads. This was a solo adventure for me in many ways, even through the times that I was with friends or my french family. It was part of my journey towards feeling unrestrained, and yet in many ways I did feel constricted for parts of it. I realize in hindsight how that has opened up my life now; how like in yoga class after an intense twist your body is filled with oxygen and energy once you release the bind. I feel a new sense of direction and motivation after my trip that releases at unexpected moments.

Diabetically speaking, carrying my supplies was less of a hassle and challenge than I expected. I guess I’m getting better at it. When I traveled in Costa Rica during my Junior year of college, I had a lot of scary lows, a lot of fear over not having my supplies or finding myself unprepared and without access to what I needed, food or medical-wise. But even though I traveled for much of the time alone, staying in hostels where no one knew I was diabetic and even if I’d wanted to tell them I might have had to do it in German (French and Spanish I can do, but there are so many languages in Europe!), I don’t have any poignant memories of diabetes impeding what I wanted to do. Realizing that makes me want to shout with joy. I have become accepting of this condition to the point that I was surprised to suddenly recognize at some point that I had not been thinking about it. That is like stage three acceptance! (I have a feeling there are many more stages).

So I want to talk more about the trip, but my brain is already catapulting into the future with dreams and plans of my life as a nutritionist, diabetes educator, and food policy activist. Maybe I’ll never call diabetes a blessing in disguise, but it is really powerful for me to admit that having this condition has and still is shaping my passion, my drive, and my relationship with my body for the better. It is even shaping my career choices at this point, and I am so excited to be on the cusp of dealing with this global epidemic that is such an indicator of the pressing issues of our time. The rise in diabetes correlates with our disconnection and disharmony with the Earth, it follows poverty and economic inequality, it speaks to racial and economic separation, it illustrates how our lifestyles and priorities have so rapidly changed, largely affected by media and marketing.

Whoo, I feel I’m off on a tangent. I am experimenting with using this technology information share free-for-all as a way to be more connected, not less so, and I think blogging is an amazing way to empower the individual. Between managing a new job and diabetes it’s hard to find time to write, but writing is one way I manage my stress, and stress is the main culprit in my diabetes management. I kept a journal all through my trip and wrote in it nearly everyday – I think it served as a friend and comfort to me through my lonely times, of which there were many. Journaling for me is a way to jump into a self-expression that requires no explanation, no background, and no structure; no sense has to be made. It almost always grounds me when I am floating for some reason or the other, maybe it’s traveling, searching for a job and purpose, or uncertainty in my relationships. It is for me, and it is simple. In a world of complicated diabetes management that changes everyday, my journal is stable and always ready to listen. In a strange way it holds me accountable to myself as well. I have read back over past journals and realized that at some level I knew all along whether a situation was going to be healthy or sustainable for me, even if I have not always heeded that intuition. I’ve realized too that I have the power to view diabetes as a blessing and the lessons that it has brought to me as gifts, all through reassuring myself before I ever needed reassuring. It is powerful and amazing to honor yourself by recording whatever speaks to you in the moment.